The Macintosh family, of Junction Road, Burgess Hill, have decided to wind up their fundraising after amassing about £16,000 in memory of Briony, who died, aged five, in 2004.

Relatives and friends are now in the processs of collecting sponsorship from their latest and last fundraising event, the Lewes-Newhaven raft race.

They raised £4,000, four times the amount they had expected.
Briony died at only five after a courageous struggle with continual ill-health and handicap.

The final effort at Lewes means the family has raised about £16,000 to help other sick children since Briony died in 2004.

They began the fund to buy special sensory equipemnt for Bryony and after she died they concentrated on raising money to help ill youngsters being treated at the Royal Alexandra children hospital in Brighton.

Briony's mother Heather said after Sunday's race: "Amazingly, we have raised about £4,000 from this event, four times the amount we set out to raise, which means our grand total will be nearer £16,000, rather than the £13,000 we were aiming for.

Briony was born with severe brain damage and suffered many medical problems. Doctors thought she might die within a year but she she fought on for five years, despite suffering epilepsy, blindness, and a chronic lung condition.